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Haley Maddox

What are the warning signs of type 1?

Thirst that won't quit, constant trips to the bathroom, weight loss without trying, and deep tiredness. See them? Get a blood sugar check soon.

Type 1 can show up at any age, though it's most common in kids and young adults. It comes on fast, over weeks or months, not years. A simple blood sugar check rules it in or out.

Warning signs

  • Very thirsty
  • Peeing a lot, including new bed-wetting in a child who was dry
  • Very hungry
  • Losing weight without trying
  • Very tired
  • Blurry vision
  • Very dry skin, or sores that heal slowly
  • Mood or behavior changes

Go to the ER: fruity breath, nausea or vomiting, belly pain, trouble breathing or confusion can mean diabetic ketoacidosis (DKA), a medical emergency.

Seeing signs? Call a doctor and ask for a blood sugar check. Don't wait it out. Family history raises the risk, so relatives of someone with type 1 can ask about screening. Catching it early can help avoid or delay symptoms.

Sources: California Department of Education · CDC, About Diabetes

Is type 1 the same as type 2?

No. Same name, different disease. Nobody causes their own type 1, and there's no known way to prevent it.

Type 2 is about 90–95% of all diabetes, so most of what people hear, and most of the advice they pass along, is about type 2. Much of it doesn't fit type 1.

CompareType 1Type 2
What happensThe immune system stops the body from making insulinThe body doesn't make enough insulin or can't use it well
InsulinNeeded every day to surviveTreated with medicine plus healthy eating, activity and weight loss
Who gets itUsually children and young adultsUsually adults, though more kids and teens now
How it startsSuddenly, over weeks or monthsSlowly, over many years, sometimes with no symptoms
PreventionNo known way to prevent itCan be prevented or delayed with lifestyle changes
How commonAbout 5–10% of casesAbout 90–95% of cases

What that means

  • Insulin isn't optional. No diet or exercise plan replaces it.
  • Type 2 advice doesn't apply. Weight loss and diet changes help manage type 2. They don't treat type 1.
  • No cure yet, for either. Both can be managed, every day.

Source: CDC, About Diabetes

How does insulin work?

Insulin moves sugar out of the blood and into the body's cells, where it becomes energy. In type 1, the body stops making it, so you give it yourself.

Carbs turn into sugar in the blood. Most bodies release just the right amount of insulin, all day, without thinking about it. With type 1 you do that job by hand, with two kinds of insulin timed to your day.

Two kinds of insulin

Basal
Long-acting insulin, like Lantus. The steady background dose, working around the clock to cover what the body needs between meals and overnight.
Bolus
Rapid-acting insulin, like Humalog. The dose for meals and snacks with carbs, and to bring a high back down.

How a bolus works

  1. Count the carbs in what you're about to eat.
  2. Match the dose to those carbs using your own insulin-to-carb ratio, plus a correction if you're running high.
  3. Take it on the timing your care team gives you. For Humalog, that's within 15 minutes before eating, or right after.

The balancing act: too much insulin for the carbs brings a low. Too little leaves you high. It's math at every meal, and your ratio and correction factor come from your care team.

Sources: Children's Nebraska, Insulin Calculations · Cleveland Clinic · Humalog FDA label

What's a CGM?

A continuous glucose monitor: a small sensor that reads blood sugar around the clock and sends it to a phone. Dexcom makes one of the most common ones.

It's the small round device you may see on the back of someone's arm or on their belly. It sits just under the skin and checks every few minutes, so the wearer sees their number, and which way it's heading, without pricking a finger.

What it does

Readings
Up to every 5 minutes, with a trend arrow showing rising, steady or falling.
Alerts
It warns ahead of a high or a low, so you can act before you feel it.
Sharing
Family can follow the numbers from their own phones.
Sensors
A Dexcom G7 lasts up to 10 days, then you swap in a new one.

Hear it beep? That's the CGM doing its job. Give the wearer a moment to check it. When how they feel doesn't match the number, a finger prick confirms it.

Want the full setup? See my Dexcom, Zukka and Nightscout guide.

Source: Dexcom, What is CGM?

What's glucagon?

The rescue medicine for a severe low. It tells the liver to release its stored sugar, raising blood sugar when someone can't eat or drink.

Glucagon is also a hormone the body makes on its own, the opposite of insulin: insulin lowers blood sugar, glucagon raises it. As a medicine it has one job. It's for a low so serious the person has passed out, is having a seizure, or can't safely swallow.

If someone needs it

  1. Give the glucagon. Don't wait on a number.
  2. Call 911.
  3. Unconscious? Lay them on their side.
  4. Nothing by mouth until they can swallow. It usually works in about 15 minutes.
  5. Then fast sugar, a snack, and a call to their family or care team.

Know theirs: glucagon comes as a nose spray, a ready-to-use injector, or a kit you mix. If you spend time with someone who has type 1, ask them to show you where theirs is and how it works, before you ever need it.

Sources: Children's Health · CDC · Baqsimi directions

How does water affect blood sugar?

They feed each other. Too little water can push blood sugar up, and high blood sugar makes you pee more, which dries you out further.

That loop is why water is the first move for a high, and why thirst and lots of bathroom trips are signs of one. Heat speeds it all up: people with diabetes get dehydrated faster, and high temperatures change how the body uses insulin.

The short version

  • Water first, nearly always. Before, during and after exercise, even when you aren't thirsty. Thirst lags behind, especially in kids.
  • Running high? More water.
  • Ketones? Plain water, and no exercise until they clear.
  • Sports drinks have carbs. Count them as food, or use them as fuel or to treat a low.
  • Juice and regular soda are for lows, not thirst.
  • Skip caffeine and energy drinks, especially in the heat.

Hot days and sick days: check more often in the heat. Vomiting or can't keep fluids down? You can dehydrate fast, so check ketones and call your care team.

Sources: CDC, Managing Diabetes in the Heat · Nationwide Children's · Starship Children's Health

What shouldn't I ask?

Skip anything that polices food. Curious questions are welcome. “Can you eat that?” and “Should you be eating that?” aren't.

Most people mean well. These come up all the time, they land badly, and each one has an easy swap.

Skip these

“Can you eat that?”
Yes. People with type 1 can eat what anyone else eats. They count the carbs and match their insulin to the food. Try instead: Pass the cake like you would to anyone else.
“Should you be eating that?”
They already know what they're eating, down to the gram. Food questions turn a snack into a checkup in front of everyone. Try instead: If you're serving food, offer the label or carb count.
“Did you eat too much sugar?”
Sugar doesn't cause type 1. It's an autoimmune disease, and nothing they did brought it on. Try instead: “How did you find out?” if they seem happy to talk about it.
“Is it the bad kind?”
There's no good kind. Both types are serious. Try instead: “How does type 1 work for you day to day?”
“Have you tried cutting carbs, or cinnamon?”
No diet, supplement or tea replaces insulin in type 1. Try instead: Leave care advice to their care team.
“Will you grow out of it?”
Type 1 is lifelong. There's no cure yet. Try instead: “Is there anything I should know to help?”
“Is that number bad?”
Blood sugar numbers are information, not a grade. Highs and lows happen even with perfect effort. Try instead: “Do you need anything?” and let them decide.
“My grandma had diabetes and lost her foot.”
Worst-case stories scare more than they help, and are often about type 2. Try instead: Ask about them, not someone you knew.

How can I learn more?

Start with the person you know who has type 1. Kindly ask. Most people are glad to explain how it works for them and what helps.

Good questions to ask: What should I do if you're low? Where do you keep your fast sugar and glucagon? Is there anything you'd like me to know? Do you want me to say something, or let you handle it?

Good places to read

From this site: Dexcom, Zukka and Nightscout setup · Reading the glucose reports

A note from me
My diabetes care is managed in close partnership with my care team, a group of people who care a lot about getting it right. This page shares general information to help people understand type 1. It isn't medical advice. Talk with your own doctor or diabetes care team before you change anything about your care.